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Thursday, September 3, 2009
Monday, August 24, 2009
Saturday, July 11, 2009
Boston is doing so good!!! He is tolerating his feeds really well and is off his O2 Yeah!!! He has been on it since birth so this is a great thing to celebrate!!! He is once again capturing the hearts of all those around him and his sweet spirit lights up everyone who sees him. He still loves all the attention the nurses are giving him and was so excited when his sisters and brother came to see him! hopefully coming home Sunday or Monday.
Friday, July 10, 2009
So here we are again in the hospital! He is doing great. They did a surgery putting a "G tube" in his tummy. This will replace the NG tube that was in his nose. They also did a surgery where they wrapped his stomach around his esophagus to stop him from refluxing. He seems a little sore and uncomfortable, but he is OK and much happier since they fed him. If he can tolerate it all he will go home on Sunday!
Again I have to Say thank you to all my family and wonderful friends who are so supportive to our family. I know this little guy is special to allot of people and for that I am very grateful. Thank you for all the prayers and offers of help. You are all great and I love you all
Again I have to Say thank you to all my family and wonderful friends who are so supportive to our family. I know this little guy is special to allot of people and for that I am very grateful. Thank you for all the prayers and offers of help. You are all great and I love you all
Thursday, April 16, 2009
BOSTON DAY #8 GOING HOME!!!!
I wanted to post a update on Boston, He is finally going home!!! Yeah... poor little guy. He has been through so much. The doctors have discovered that he has severe reflux, and was aspirating whenever he ate, which caused fluid in his lungs and then caused pneumonia. We are so grateful to have caught this early enough to fix the problem. The doctors think that if we give him a month on a feeding tube, it will allow for his lungs and vocal sensations to heal. They are also treating his Thyroid as well. They believe that he will outgrow the reflux, and then we will be able to take the feeding tube out.
I am never amazed anymore, people are just amazing. Since I have been here I have had many experiences, that have touched my heart and uplifted my spirit. People are just amazing... I ran into Dr. Randall, he treated Hannah when we found her cancer, I often think of him and how grateful I am for his knowledge, but most of all for his compassion. As I talked to him, I was amazed that he remembered Hannah, and as a parent you want the doctors to see your child as a individual rather than another "patient". Here at Primary Children's Medical Center they definitely do just that. Our children are so precious, so innocent, and so pure, and you just pray that that is not taken from them when they experience sickness. Often times its a early awakening to our scary world, and as parents we try to protect our children.
I can say that Hannah, Boston and all of my children, have helped me remember what is important in life. Their innocence is so precious, and I am grateful they are protected, that the doctors and nurses and staff understand that. This is a great hospital, and my heart is filled whenever I walk in the doors.
I am never amazed anymore, people are just amazing. Since I have been here I have had many experiences, that have touched my heart and uplifted my spirit. People are just amazing... I ran into Dr. Randall, he treated Hannah when we found her cancer, I often think of him and how grateful I am for his knowledge, but most of all for his compassion. As I talked to him, I was amazed that he remembered Hannah, and as a parent you want the doctors to see your child as a individual rather than another "patient". Here at Primary Children's Medical Center they definitely do just that. Our children are so precious, so innocent, and so pure, and you just pray that that is not taken from them when they experience sickness. Often times its a early awakening to our scary world, and as parents we try to protect our children.
I can say that Hannah, Boston and all of my children, have helped me remember what is important in life. Their innocence is so precious, and I am grateful they are protected, that the doctors and nurses and staff understand that. This is a great hospital, and my heart is filled whenever I walk in the doors.
Tuesday, April 14, 2009
BOSTON DAY #6
We are now at Primary Children's Medical Center and hoping today to be able to find out whats going on with Bossy.... They are doing a Echo to look at his heart and a upper GI test (again) then we will meet with the pulmonary unit to check his lungs....
Hes stable and seems to LOVE all of the attention the nurses and doctors are giving him! But the poor guy has been poked so many times his little arms have bruises on them.
But we are hopeful that they give us some answers today. Thank you for all your support, an prayers!
Hes stable and seems to LOVE all of the attention the nurses and doctors are giving him! But the poor guy has been poked so many times his little arms have bruises on them.
But we are hopeful that they give us some answers today. Thank you for all your support, an prayers!
Monday, April 13, 2009
Boston
I wanted to post a update on Boston, since he was born we have not been able to get a diagnosis as to why he is always "junky" sounding when he breathes. He seems to struggle to breath, and has been admitted to the hospital I think were on our 4th time since his birth! Its all a blurr. This time he actually had Pneumonia ...... Quite scary for a little guy.
Sam and I have been here since Wed. Both of us juggling the kids and hospital. He is doing better and the infection that was in his upper lung is now starting in his lower lung.... Sigh poor guy.
They are now sending Bossy down to PCMC in SLC to do further testing on his lungs. The doctor feel like he may be aspirating. So I will keep you all posted, and ask to keep him in your prayers.
Its amazing how he continues to draw people near to him... all of the nurses love him and comment on his hair, and he always gives them a smile, well at least when they are oogling over him as opposed to poking him with a needle! BOOoooo.
We love you all and ask for your prayers!
Sam and I have been here since Wed. Both of us juggling the kids and hospital. He is doing better and the infection that was in his upper lung is now starting in his lower lung.... Sigh poor guy.
They are now sending Bossy down to PCMC in SLC to do further testing on his lungs. The doctor feel like he may be aspirating. So I will keep you all posted, and ask to keep him in your prayers.
Its amazing how he continues to draw people near to him... all of the nurses love him and comment on his hair, and he always gives them a smile, well at least when they are oogling over him as opposed to poking him with a needle! BOOoooo.
We love you all and ask for your prayers!
SWEET NIBBLETS!
Ok, So we had the best time at the Hannah Montana Movie Premier!! Thanks To Blake and Sue who got us the tickets and gave us heads up that there might be a surprise! And there was Miley Cyrus appeared, and it was magical! The movie was about to start and they turned the lights on and announced that they had a visitor!! Miley and her Dad Billy Ray came out and the crowd went wild!!! Thanks kids for a great time!!!
Tuesday, March 31, 2009
Saturday, February 28, 2009
The Clowns Of God
" I know what you are thinking. You need a sign. What better one could I give than to make this little one whole and new? I could do it; but I will not. I am the Lord and not a conjuror. I gave this mite a gift I denied to all of you, eternal innocence. To you he looks imperfect, but to me he is flawless, like the bud that dies unopened, or the fledglings that fall from the nest to be devoured by ants. He never offended me, as all of you have done. He never perverted the work of My Father's hands. He is necessary to you. He will evoke the kindness that will prompt you to gratitude for your own good fortune. More, he will remind you every day that I am who I am, that My ways are not yours, and the smallest dust mite whirled in darkest space does not fall out of my hand. I have chosen you. You have not chosen me. This little one is my sign to you. Treasure." by Morris L. West
This was given to us by Sam aunt and Uncle, Larry and Anne Garfield
This was given to us by Sam aunt and Uncle, Larry and Anne Garfield
Monday, February 23, 2009
I Need Everyones Info!
Ok family and friends, I need all of your blogs and e-mail, ect.... Taylor, Chelsey, Jess, I am talking to you guys! E-mail them to me @ natalienewey@hotmail.com!
Saturday, February 14, 2009
I finally got brave and joined facebook!!! Carly is so proud of me!!! Its way fun to contact people that I haven't seen for years! I have to be careful its addicting!
Thursday, February 5, 2009
GOD
Before He sent each of His children to earth, gave each of them a very carefully selected package of problems.
These, He promised, smiling, are yours alone.
No one else may have the blessings these problems will bring you.
And only you have the special talents and abilities that will be needed to make these problems your servants.
Now go down to your birth and to your forgetfulness, Know that I love you beyond measure. These problems that I give you are a symbol of that love.
The monument that you make of your life with the help of your problems will be a symbol of your love for me, your father.
-Blaine Yorganson
So here is the latest update on Boston.....
He is doing great, he has been gaining weight, and is just sweet and perfect! He is still on O2, but other than that he is doing just great, the girls just love him , and #4 calls him bossy when he cries #4 will come running in the room, saying Bossy!!!!
We had the Utah Down Syndrome Foundation over to our house, and it was our pleasure to learn about the foundation and all the help that is out there for these sweet little children.
They provide help for the children according to there needs, they come to your house to do physical therapy, speech therapy, and any other needs that they might have, it was wonderful to know that there is help.
I am so amazed at how generous people have been, and how much this little spirit has touched so many in such a short amount of time.
He is doing great, he has been gaining weight, and is just sweet and perfect! He is still on O2, but other than that he is doing just great, the girls just love him , and #4 calls him bossy when he cries #4 will come running in the room, saying Bossy!!!!
We had the Utah Down Syndrome Foundation over to our house, and it was our pleasure to learn about the foundation and all the help that is out there for these sweet little children.
They provide help for the children according to there needs, they come to your house to do physical therapy, speech therapy, and any other needs that they might have, it was wonderful to know that there is help.
I am so amazed at how generous people have been, and how much this little spirit has touched so many in such a short amount of time.
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