BOSTON DAY #8 GOING HOME!!!!

I wanted to post a update on Boston, He is finally going home!!! Yeah... poor little guy. He has been through so much. The doctors have discovered that he has severe reflux, and was aspirating whenever he ate, which caused fluid in his lungs and then caused pneumonia. We are so grateful to have caught this early enough to fix the problem. The doctors think that if we give him a month on a feeding tube, it will allow for his lungs and vocal sensations to heal. They are also treating his Thyroid as well. They believe that he will outgrow the reflux, and then we will be able to take the feeding tube out.

I am never amazed anymore, people are just amazing. Since I have been here I have had many experiences, that have touched my heart and uplifted my spirit. People are just amazing... I ran into Dr. Randall, he treated Hannah when we found her cancer, I often think of him and how grateful I am for his knowledge, but most of all for his compassion. As I talked to him, I was amazed that he remembered Hannah, and as a parent you want the doctors to see your child as a individual rather than another "patient". Here at Primary Children's Medical Center they definitely do just that. Our children are so precious, so innocent, and so pure, and you just pray that that is not taken from them when they experience sickness. Often times its a early awakening to our scary world, and as parents we try to protect our children.

I can say that Hannah, Boston and all of my children, have helped me remember what is important in life. Their innocence is so precious, and I am grateful they are protected, that the doctors and nurses and staff understand that. This is a great hospital, and my heart is filled whenever I walk in the doors.

BOSTON DAY #6

We are now at Primary Children's Medical Center and hoping today to be able to find out whats going on with Bossy.... They are doing a Echo to look at his heart and a upper GI test (again) then we will meet with the pulmonary unit to check his lungs....

Hes stable and seems to LOVE all of the attention the nurses and doctors are giving him! But the poor guy has been poked so many times his little arms have bruises on them.

But we are hopeful that they give us some answers today. Thank you for all your support, an prayers!

Boston

I wanted to post a update on Boston, since he was born we have not been able to get a diagnosis as to why he is always "junky" sounding when he breathes. He seems to struggle to breath, and has been admitted to the hospital I think were on our 4th time since his birth! Its all a blurr. This time he actually had Pneumonia ...... Quite scary for a little guy.

Sam and I have been here since Wed. Both of us juggling the kids and hospital. He is doing better and the infection that was in his upper lung is now starting in his lower lung.... Sigh poor guy.

They are now sending Bossy down to PCMC in SLC to do further testing on his lungs. The doctor feel like he may be aspirating. So I will keep you all posted, and ask to keep him in your prayers.

Its amazing how he continues to draw people near to him... all of the nurses love him and comment on his hair, and he always gives them a smile, well at least when they are oogling over him as opposed to poking him with a needle! BOOoooo.

We love you all and ask for your prayers!

SWEET NIBBLETS!

Ok, So we had the best time at the Hannah Montana Movie Premier!! Thanks To Blake and Sue who got us the tickets and gave us heads up that there might be a surprise! And there was Miley Cyrus appeared, and it was magical! The movie was about to start and they turned the lights on and announced that they had a visitor!! Miley and her Dad Billy Ray came out and the crowd went wild!!! Thanks kids for a great time!!!

Me and my awesome Auntie!

6SOME ready to see Hannah Montana!